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Members of support/advocacy groups meet with legislators in Northeast PA

Back: Ed Zygmunt (from Congressman Chris Carney’s office), Pastor Dan Miller, Paul Ronko, Randy Girven, Jeff Thurston/   Center: Senator Lisa Baker, State Representative Sandra Majors, Robin Lynn/  Front: Donna Falcone, State Representative Karen Boback, Faith Vis

July 29, 2010

Today at the office of State Representative Karen Boback, in Tunkhannock PA, members representing several Lyme Disease Support and Advocacy groups across the region met with State Legislators and Representatives to discuss the Lyme Disease crisis in Pennsylvania.   Topics covered included the impact of Lyme Disease on children and families across the commonwealth, the financial burden of ineffective diagnostic  and treatment options currently in place, and the details and provisions of PA Senate Bill 1199 (The Lyme and Related Tick-Borne Illnesses Education, Prevention, and  Treatment  Act) which is before the Senate with a vote expected later this year.   PA SB 1199, among other provisions, would give patients access to treatment options beyond the currently recommended 28 days of antibiotic treatment, which is not always enough to treat Lyme Disease and other Tick Borne illnessesEd.

6/22/2010 PA SB1199 Public Hearing:  VIEW VIDEO of Hearing

4/27/2010 ILADS Response to IDSA RULING: Astonishment As Medical Panel Rubber Stamps Its Own Controversial Guidelines

4/25/2010 Open Letter to the IDSA from Under Our Skin's Jordan Smith.  This article provides contact information to members of the IDSA as well as the Attorney General of CT.

4/22/2010 LYMEPOLICYWONK: IDSA Voting Procedures under Review ....

4/22/2010 Pat Smith's response from the LDA

4/22/2010 Special Review Panel Unanimously Upholds Lyme Disease Treatment Guidelines